My son Ryan was diagnosed with Duchenne Muscular Dystrophy in October 1983. I remember the neurologist’s words: “Mr Struk, go home, enjoy Ryan he’ll be dead by the time he’s fourteen or fifteen.”. Ryan was three years old.

Yesterday, I attended this inaugural symposium. Murdoch Children’s Research Institute (MCRI) is Australia’s largest child health research centre and their work is broken up into

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